Sandi's Journey with PSC Partners Seeking a Cure: A collection of writings by Sandi Pearlman (1975-2013) Community Relations Chair, PSC Partners Seeking a Cure, by Sandi Pearlman
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Sandi's Journey with PSC Partners Seeking a Cure: A collection of writings by Sandi Pearlman (1975-2013) Community Relations Chair, PSC Partners Seeking a Cure, by Sandi Pearlman
Free Ebook PDF Sandi's Journey with PSC Partners Seeking a Cure: A collection of writings by Sandi Pearlman (1975-2013) Community Relations Chair, PSC Partners Seeking a Cure, by Sandi Pearlman
This is a story about a young woman, Sandi Pearlman, who was diagnosed with primary sclerosing cholangitis (PSC), a rare liver and bile duct disease, and her involvement with PSC Partners Seeking a Cure (PSC Partners). Sandi served as the foundation’s community relations chair. Through her writings and added commentary we share Sandi’s journey and her efforts to help others through support, education, friendship, inspiration and love. This is truly a guidebook for people trying to cope with serious illness. All profits received from the sale of this book are donated directly to PSC Partners, a 501(c)3 non-profit foundation dedicated to helping those affected by this chronic, life-threatening disease. Through descriptive articles and humor, Sandi writes about the knowledge and emotional support one receives from interacting with others who “get it.” There is a discussion of programs in which she was actively involved, such as fundraising, mentor-mentee and Facebook, each one directed to how we are “together in the fight.” There are entries on such topics as spirituality and “Family and Laughter” and on Facebook threads of interest to those affected by disease and their caregivers. These threads run the gamut from the more serious topics, such as “Quality of Life”, to the more humorous, but still important topics such as “I so hate it when… (because we all need a place to laugh and vent! :).” The book also offers a snapshot of how Sandi was seen by others - “She changed the world one day at a time and had the ability to transfer all her joy to each one of us.” The book closes with Sandi’s own words, printed on a national government health website, “I’m no longer who I used to be. . . . But . . . I’m a fighter and an educator. . . . And if my disease takes me tomorrow. . . . I won’t cease to exist. Who I was, what I did, those questions may still be asked. The answers? My answers? More researchers and doctors and civilians will know . . . . there is a war to win than before I came. . . .”
Sandi's Journey with PSC Partners Seeking a Cure: A collection of writings by Sandi Pearlman (1975-2013) Community Relations Chair, PSC Partners Seeking a Cure, by Sandi Pearlman- Amazon Sales Rank: #1341623 in Books
- Published on: 2015-03-13
- Original language: English
- Dimensions: 11.00" h x .28" w x 8.50" l,
- Binding: Paperback
- 116 pages
Where to Download Sandi's Journey with PSC Partners Seeking a Cure: A collection of writings by Sandi Pearlman (1975-2013) Community Relations Chair, PSC Partners Seeking a Cure, by Sandi Pearlman
Most helpful customer reviews
11 of 11 people found the following review helpful. Her passion and vision represent the invincible power of the human mind at its very best and at its purest By Rachel Sandi's story is not only one person's story. It belongs to everyone who faces pain, sorrow, loss, illness. Yet her story is unique. It is about a young woman whose strength, passion and vision represent the invincible power of the human mind at its very best and at its purest. Though she is no longer with us, her legacy continues to live in every cell of the patient organization she represented during her short life. It is especially meaningful that Sandi's father is the author of this book. He lets Sandi do all the telling through her beautiful writing, and in the interstices, we feel the powerful love of a father for his daughter. We also feel his urgency to share Sandi's message of living life to the fullest and not allowing adversity to distort or destroy the human spirit. Through her commitment to helping and in some cases, saving hundreds and hundreds of lives, Sandi's story continues.I was fortunate to know and love Sandi and am elated to see that her story will continue to help many more people, both inside and outside her community.
0 of 0 people found the following review helpful. Meeting the challenge By Albert A. Tumminia I found this book to be extremely moving. Sandy's courage and humor was present through out the book. I highly recommend this book to those who are looking for inspiration.
0 of 0 people found the following review helpful. Amazing story about young girl's fight with insidious disease By Zoran Jakac Amazing story about young girl's fight with insidious disease. Her optimistic way to go through this, is inspiring for us, who deal with the same disease.
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